VIRGINIA COMMONWEALTH UNIVERSITY

NATIONAL RESOURCE CENTER
FOR TRAUMATIC BRAIN INJURY

Neuropsychology and Rehabilitation Psychology Division Department of Physical Medicine and Rehabilitation.

Brain Injury Association, Support Groups, Survivors

Brain Injury Association, Inc. (BIA)

The official site features state office contacts; media resource references (books, tapes, video); information on injury types, coma, evaluation; pediatric information (e.g., prevention, fact sheet); facts and figures. A community forum and bulletin board are also provided.

Headway Victoria

Regional information; publications list.

While you are waiting

Nice site to start with when family member has newly acquired TBI. Provides general information about Brain Injury (e.g., glossary of terms), an ICU Guide (e.g., explaining function of equipment, roles played by different medical team members, etc.), frequently asked questions in prognosis, advocacy, financial and legal issues, discharge, and rehabilitation.

TBI Chat Room

Real-time chat support for survivors of traumatic brain injury.This java-enabled site may take a few minutes to download, but may be a great resource, especially for those with limited transportation resources.

The TBI Recovery Network

The Brain Injury Recovery Network, a 501(c)(3) non-profit organization dedicated to helping victims and families of brain and other serious injuries, has developed a Web site dedicated to providing practical advice from people who have suffered through the same experience. Their goal to provide information and support for both the crisis and the long-term care phases of recovery as well as prevention programs.

The Brain Injury Information Network

TBINET hosts e-mail lists for Brain Injury and other medically related topics. Features include: Searchable archive of past messages; security and privacy settings, customized for each list; virus and Spam protection. Lists include those related to: ABI/TBI Children Support; Caregivers; Spouses; Coma; Learning Disabilities

Surviving Brain Injury

Stories by David R., who wants folks to visit his personal Web Site.

Family Caregiver Alliance Resource Center

Resources and links: California's Caregiver Resource Centers; Quick Facts About Common Brain Impairments; publications and Fact Sheets; Public Policy and Long-Term Care; Links to Other Resources; Research Articles; Request for Participants in non-FCA Research Studies.

TBI Home

Offers message boards on a variety of topics including support, caregivers, survivors, current events, humor.  Also provides TBI/ABI-information and related links.

Social Security Disability Resource Center

An informational website that provides answers to questions about how to apply for social security disability, appeal a claim in the event of a denial, and how to avoid common mistakes made by applicants.

16 comments (Add your own)

1. John umar wrote:
I need to politely, caring, sharing, all base of true respect for all others, and I happen to be totally Open Honest, based on Truths Only.

NOTE:The Capitalized four words at out of my first sentence and out of the last six words that ended which were once again keyboarded the same way Open Honest Truths Only I had created one simple code more than 4 years ago which is OHTO. That abbreviated Code is Mine Alone to be used and I do not approve anyone other person to use OHTO unless they care to contact me.

OHTO shall be my Nickname to be used once I am approved to be joining into the Chatroom. And I shall be quite pleased into introducing myself by any for of my true first and last name. And for me to become interested into Openly Sharing is that I happen to be quite Caring and am very interesting of becoming involved personally to Help other both TBI Survivors as well as those who are employed to work very well to preform services just described in this sentence quite clearly to any or everybody all at once if so.

Fri, October 17, 2014 @ 6:58 PM

2. Garry Andres wrote:
I used to go into tbichat. Now I can't find it anymore. Is it gone?

Sun, February 21, 2016 @ 12:48 PM

3. John wrote:
I am a very highly classified young man of the age of 46 years young. In search for an equal life partner. If you know of any young ladies in my age range. please feel free to Email me at my address which is jrocks30@aol.com.
As I have been driving for 24 out of my almost 26 year injury as well as living on my own for the past 16 years now.
And I reside in the township of Jackson, in the state of New Jerzeyyy!!!
As you can see that I also have a great sense of humor to boot!!
John J. Meehan

Tue, August 23, 2016 @ 11:40 AM

4. John wrote:
I have been unseccessfully been trying to find the TBI chat room online for the past week or so. SO if you have an updated address to this site, then please by all means email it to myself at my address which is jrocks30@aol.com.

Once again, your help is much appreciated.
John J. Meehan
A TBI survivor of a skiing accident that took place back on 12/27/90.
But am sure, that you are aware of the fact that having a head Injury is a lifetime ordeal.

Sun, August 28, 2016 @ 6:28 AM

5. Molly wrote:
I am hoping to join a chat room. I am a tbi survivor 2004.

Mon, September 5, 2016 @ 12:15 AM

6. Beth Brown wrote:
I am married to a TBI survivor. We have been married 6 month. Known each other 2 years. His injury was 39 Year's ago, due to car accident. He thinks the w world should and does revolve around him. He does not want to hear anyone opinion,unless it agrees with his. My question is this typical behavior of a TBI survivor

Sat, September 24, 2016 @ 5:29 PM

7. Sue Lancashire burnley wrote:
Had bleeding on the brain then 2 year later I had a subracnoid hemorrhage I was lucky I still have problems

Thu, October 6, 2016 @ 7:23 AM

8. Sue Lancashire burnley wrote:
Has anyone had anything similar 2kx44

Thu, October 6, 2016 @ 7:26 AM

9. Marie wrote:
Our 31 year old son sustained a TBI one month ago.H e was in ICU for 3 days and the rehab for 3 days. He was discharged 2 weeks ago. He seems ok,still has headaches and is irritable and somewhat impulsive. We have a week vacation coming up and I am feeling we need to cancel. I am worried if he is left alone. Any thoughts?

Tue, October 11, 2016 @ 6:29 PM

10. Ozzy wrote:
This is a struggle. As much as we might want to quit, we cant quit. Keep fighting. I had a traumatic brain injury at 8 years old when i fell from a second floor house. Im 45 now. Its been hell since i had my injury but i have never quit although many times i wanted to quit. Keep fighting. It will get better

Sat, December 10, 2016 @ 4:07 PM

11. Ozzy wrote:
This is a struggle. As much as we might want to quit, we cant quit. Keep fighting. I had a traumatic brain injury at 8 years old when i fell from a second floor house. Im 45 now. Its been hell since i had my injury but i have never quit although many times i wanted to quit. Keep fighting. It will get better

Sat, December 10, 2016 @ 4:09 PM

12. Tom wrote:
Been married for 31 years now had a tbi 14 years ago now wife says she doesn't love me anymore because I'm not the same man she married.I don't want 2 go on without her , she is my every thing,how can she do this.most days she is the only one I see

Fri, December 16, 2016 @ 6:53 PM

13. Chrystal wrote:
Hi I am a 32 yr old married mother of 2.. I do not have an "official TBI but I have had 4 concussions in 2 years and have been suffering" pretty strong symptoms. I have found some refuge with relating to very mild TBI injuries. And I am struggling with coping with looking fine on the outside and feeling like a different person on the inside. Thank you.

Sun, January 15, 2017 @ 10:13 AM

14. Carolina Boy wrote:
Wanting to be alone after a brain injury is normal. People have to find & get to know the new version of themselves.The sad part is that seizures do come post brain injury.Most feel alone while regaining life post a brain injury. I was in a coma for 3mthns post injury time. The top 2/3's of my brain was removed. I do miss driving but I can live alone & take care of myself.I just need rides.But life does go on.My hardest part is knowing when a seizure will happen.I have been told I go into a blank stare when my seizures begin. But I do miss the TBI chatroom I first found online post injury.People can send me emails. I miss chatting a lot with others who have gone through a brain injury.

Wed, February 1, 2017 @ 9:29 PM

15. denise wrote:
I had brain surgery 17 years ago. During the surgery, I had a bleed in my carotid artery in my neck. They made an incision and clamped the bleed. I have had a great recovery from the brain surgery, but now I am having discomfort in my neck I assume is from scar tissue. It's almost like I have muscle spasms and it kind of freezes me until it passes. But lately, I'm having a straining feeling in that area without the spasms. Is there anything without surgery that I can do to relieve myself of the discomfort?

Fri, June 23, 2017 @ 9:28 PM

16. Wayne Gibson wrote:
Edited version:
wgibson70@yahoo.com

TBI
Just started using my testimony to TBI group.

I was in an automobile accident, on October 15, it will have been 28 years ago. I was in a coma for nearly 2 months and in the hospital so hospital for 3.5 months exactly. (10/15/89 to 1/1/90)
I had 2 brain surgeries, my body's right side was paralyzed for months, I had a Tracheostomy, and a liver laceration, and only being given a 5% chance of living by me operating Dr's, to name the big injuries.
I had to go through the mill to recover, but, I did it, with God's hand in it all.
My 2 brain surgeries have been the most major injuries of it all. I married the woman of my dreams 4 years ago, who I love more than my own life. However, because of my brain surgeries, I still suffer from anger outbursts, and I do not like them! Why? Because my wife, who is a Christian and a teacher at a local school, kicked me out of our house 3 days ago, and told me that she wants to divorce me, because of my outbursts and actions. I went to a NeuroPsychiatrist 2 years ago and was tested. I wrongfully didn't go back following this visit, but, from what my outbursts have now caused, I am going back to him to complete my needed journey on September 18. I am literally going back to the Doctor, for how ever long that it takes, to end my 28 years of attitude gloom.
If there is a TBI, stick to your NeuroPhsycholgic help following recovery, it will be necessary, my tragic encounter proves this, and do not give up. God will make a way, that is why He helps TBI sufferers to make it back to life. My awesome marriage is ending, but, my testimony of His power will carry on.
I am praying for you and yours. Please, email me any needed prayer requests or questions. :)

Tue, September 5, 2017 @ 1:37 PM

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